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Ipsen Industry-Sponsored Session

Sunday, 17 January, 2021  10:10–11:20 AM EST (16:10–17:20 CET)

Patient centred outcomes with botulinum toxin treatment in adult spasticity and cervical dystonia:
“What happens with repeat treatment in the real world?”

Chairman:
Professor Dominic Pérennou

Speakers:
Professor Lynne Turner-Stokes
Doctor Jorge Jacinto
Professor Carlo Colosimo

It is with great pleasure that I invite you to attend the sponsored symposium Patient centred outcomes with botulinum toxin treatment in adult spasticity and cervical dystonia. What happens with repeat treatment in the real world? at the TOXINS 2021 Virtual congress.

Although not a new concept, ‘patient-centred care’ attracts attention as it advocates a shift from disease-oriented management to a treatment plan that is “respectful of and responsive to individual patient preferences, needs, and values, and ensuring that patient values guide all clinical decisions.”1 When applying a focal treatment such as botulinum toxin, patient centricity must be considered a driving force of treatment, such that the injection plan is always appropriately tailored to the individual’s needs and preferences. Data from well-designed RCTs can inform our treatment decisions up to a point, but we must also consider the patient perspective and the realities of routine practice.

We have a distinguished panel of speakers, including Jorge Jacinto from Portugal, Professor Lynne Turner-Stokes from the UK and Professor Carlo Colosimo from Italy who will present findings from large, international patient surveys and observational studies, exploring the use of botulinum toxins in both spasticity and cervical dystonia. Although the patient populations are different, there are some striking commonalities that we can learn from by sharing experiences.

I look forward to hosting you on the 17th January 2021.

Professor Dominic Pérennou
Symposium chair

1- Institute of Medicine. Crossing the quality chasm: A new health system for the 21st Century. Washington, D.C. National Academy Press; 2001.

Dominic Pérennou, is Professor of Physical Medicine and Rehabilitation (PMR) at the University Grenoble-Alpes and Head of the Department of Neurorehabilitation, University Hospital Grenoble-Alpes. Dr Pérennou’s research focuses on translating basic science research into effective clinical interventions for neurological disorders, especially in the field of postural and gait disorders. He is Principal Investigator on several National Clinical Projects (PHRC) aimed at studying neural mechanisms of balance and gait disorders and their recovery after stroke, in view of implementing specific rehabilitation programs. Professor Pérennou is the Editor in Chief of the Annals of Physical and Rehabilitation Medicine, the president of the French PMR University Council, and cochair of 2020 (digital) and 2022 (on site) World Congress of Neurorehabilitation.
Prof Lynne Turner-Stokes, DM FRC MBE is a consultant in Rehabilitation Medicine and the Northwick Park Professor of Rehabilitation at King’s College London. She is Director of the Regional Hyper-Acute Rehabilitation Unit (RHRU) at Northwick Park Hospital, which provides a tertiary specialist rehabilitation service for patients with severe complex disabilities, mainly resulting from acquired brain injury, and has a national and international reputation as a leading service in the field of neurological rehabilitation. Her main academic focus is on clinical and Health Services research in rehabilitation – in particular the systematic capture of patient-centred outcomes in the context of real life clinical practice, to demonstrate the effectiveness and cost-efficiency of rehabilitation, and to enhance our understanding of what clinical approaches work best for which patients and why.
Luis Jorge Jacinto, MD is Director of the Serviço de Reabilitação de Adultos 3, Head of the Botulinum Toxin Clinics and the Gait Analysis Laboratory at the Centro de Medicina de Reabilitação de Alcoitão, Alcabideche – Portugal. He has served as a senior PM&R consultant since 2000 and is actively involved in research, peer training, pre and post-grad lecturing in different Universities in Portugal. He has published extensively on neuro-rehabilitation, botulinum toxin, movement/gait analysis, patient centered goals, outcomes in PM&R, and robotic management in PM&R. He is a member of the board of PMR of the College of Physicians of Portugal.
Carlo Colosimo MD, FEAN, is Chairman at the Department of Neurology, Santa Maria University Hospital of Terni, Italy. He is author of more than 300 original scientific papers and editor of three textbooks on movement disorders. Professor Colosimo’s clinical research activity is focused on dystonia, Parkinson’s disease, and other movement disorders, with particular interest in: use of different serotypes of botulinum toxin for the management of dystonia, infusion therapies for the management of advanced Parkinson’s disease, and the genetic, epidemiological, and clinical aspects of atypical parkinsonian syndromes. He currently acts as co- chair of the Movement Disorders scientific panel (SP) for the European Academy of Neurology.

This meeting is intended for Healthcare Professionals only.
DYS-ALL-005137

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